ID | 117140 |
Title Alternative | Transitional Care of Adult Congenital Hemophilia Patients in Tokushima University Hospital
先天性血友病患者の移行期の実態
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Author |
Saijo, Saki
Tokushima University
Nakamura, Shingen
Tokushima University
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Miki, Hirokazu
Tokushima University
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Taniguchi, Saki
Tokushima University
Okamoto, Hideki
Tokushima University
Tominaga, Masafumi
Tokushima University
Yano, Yumiko
Tokushima University
Takahashi, Mari
Tokushima University
Aota, Keiko
Tokushima University
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Suge, Toshiyuki
Tokushima University
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Osaka, Akemi
Tokushima University
Abe, Masahiro
Tokushima University
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Keywords | Congenital Hemophilia
Transitional Care
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Content Type |
Journal Article
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Description | 【Introduction】Congenital hemophilia is a category of hemorrhagic disease caused by a genetic defect in the production of coagulation factors. It is treated by administering regular coagulation factor injections on an ongoing basis. Hemophilia is a hereditary illness, often causing social and psychological problems as a result of the disease. To analyze the objective effects of hemophilia, we conducted a retrospective analysis in Tokushima University Hospital. 【Result】All 23 cases were men between the ages of20and72. Hemophilia A was present in17cases, and hemophilia B was present in six. Nineteen out of 23 cases were severe, and the others were intermediate. Medical assessments were conducted at pediatrics in seven cases and hematology in 16 cases. Adoption of the self-injection technique was not realized in five cases. Seventeen cases were complicated by hemophilic arthropathy, seven with human immunodeficiency virus(HIV), and 12 with hepatitis C virus. Eight participants were unemployed, and17were unmarried. 【Discussion】 Many adult hemophilia patients still visit pediatrics in our hospital. Hemophilia in the period of growth between adolescence and young adulthood is often accompanied by life-altering events such as entering higher education, marriage, and work experience. Therefore, collaboration among professionals of multiple occupations, such as doctors, nurses, pharmacists, medical social workers, and clinical psychologists, is essential. Furthermore, there are many cases of HIV and hepatitis C virus infections complicating hemophilia study due to the stigma surrounding HIV-tainted blood. 【Conclusion】It is imperative that we establish a long-term, sustainable, and multi-disciplinary transitional care and medical support system for patients and their families.
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Journal Title |
Shikoku Acta Medica
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ISSN | 00373699
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NCID | AN00102041
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Publisher | 徳島医学会
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Volume | 77
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Issue | 5-6
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Start Page | 261
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End Page | 268
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Sort Key | 261
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Published Date | 2021-12-25
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FullText File | |
language |
jpn
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TextVersion |
Publisher
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departments |
Medical Sciences
University Hospital
Pharmaceutical Sciences
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