Total for the last 12 months
number of access : ?
number of downloads : ?
ID 117140
Title Alternative
Transitional Care of Adult Congenital Hemophilia Patients in Tokushima University Hospital
先天性血友病患者の移行期の実態
Author
Saijo, Saki Tokushima University
Taniguchi, Saki Tokushima University
Okamoto, Hideki Tokushima University
Tominaga, Masafumi Tokushima University
Yano, Yumiko Tokushima University
Takahashi, Mari Tokushima University
Osaka, Akemi Tokushima University
Keywords
Congenital Hemophilia
Transitional Care
Content Type
Journal Article
Description
【Introduction】Congenital hemophilia is a category of hemorrhagic disease caused by a genetic defect in the production of coagulation factors. It is treated by administering regular coagulation factor injections on an ongoing basis. Hemophilia is a hereditary illness, often causing social and psychological problems as a result of the disease. To analyze the objective effects of hemophilia, we conducted a retrospective analysis in Tokushima University Hospital. 【Result】All 23 cases were men between the ages of20and72. Hemophilia A was present in17cases, and hemophilia B was present in six. Nineteen out of 23 cases were severe, and the others were intermediate. Medical assessments were conducted at pediatrics in seven cases and hematology in 16 cases. Adoption of the self-injection technique was not realized in five cases. Seventeen cases were complicated by hemophilic arthropathy, seven with human immunodeficiency virus(HIV), and 12 with hepatitis C virus. Eight participants were unemployed, and17were unmarried. 【Discussion】 Many adult hemophilia patients still visit pediatrics in our hospital. Hemophilia in the period of growth between adolescence and young adulthood is often accompanied by life-altering events such as entering higher education, marriage, and work experience. Therefore, collaboration among professionals of multiple occupations, such as doctors, nurses, pharmacists, medical social workers, and clinical psychologists, is essential. Furthermore, there are many cases of HIV and hepatitis C virus infections complicating hemophilia study due to the stigma surrounding HIV-tainted blood. 【Conclusion】It is imperative that we establish a long-term, sustainable, and multi-disciplinary transitional care and medical support system for patients and their families.
Journal Title
Shikoku Acta Medica
ISSN
00373699
NCID
AN00102041
Publisher
徳島医学会
Volume
77
Issue
5-6
Start Page
261
End Page
268
Sort Key
261
Published Date
2021-12-25
FullText File
language
jpn
TextVersion
Publisher
departments
Medical Sciences
University Hospital
Pharmaceutical Sciences