ID | 118421 |
タイトル別表記 | Process of parenting a child with RB
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著者 |
Murakami, Yoshie
Toho University
Takeda, Yuko
Keio University
Kawasaki, Yuko
University of Hyogo
Kishino, Megumi
Tokushima University
Kageyama, Megumi
Tokushima University
Sakamoto, Tomoka
Tokushima University
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キーワード | Experience
Family nursing
Genetic
Parenting
Retinoblastoma
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資料タイプ |
学術雑誌論文
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抄録 | Background : Retinoblastoma(RB) occurs at a very young age. Since the disease is diagnosed at an early age, the family is responsible for the care of the childʼs disease acceptance.
Objective : This study aims to explore the parenting process of children with RB toward disease acceptance. Methods : Parents of eleven children with RB living in Japan were interviewed, and the data were analyzed using the Modified Grounded Theory Approach of Kinoshita(M-GTA). Results : There were twenty-one concepts representing the process of parenting a child with RB while guiding him or her toward disease acceptance, and nineteen of them were classified into ten categories based on semantic similarities. The two other concepts showed similar interpretability to categories. These categories and concepts were summarized into two core categories : “Helping the child develop a positive mindset to define the disease as a part of him/herself ” and “Paving the way in advance for the child to live comfortably when his or her living space expands”. Conclusions : In a cyclical framework of parenting, consisting of two core categories described in Results, the parents coordinated these two approaches while maintaining balance by “Avoiding saying anything that does not need to be said” and established their process of parenting a child with RB while guiding him or her toward disease acceptance, according to their household situation. The results suggest the necessity of recognizing that in childhood-onset cancers, such as RB, and diseases involving genetic issues, problems tend to occur not only during the treatment period but also at the time of life events and providing support from a comprehensive perspective. |
掲載誌名 |
四国医学雑誌
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ISSN | 27583279
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出版者 | 徳島医学会
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巻 | 79
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号 | 1-2
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開始ページ | 91
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終了ページ | 102
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並び順 | 91
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発行日 | 2023-06-07
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出版社版DOI | |
出版社版URL | |
フルテキストファイル | |
言語 |
eng
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著者版フラグ |
出版社版
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部局 |
医学系
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