直近一年間の累計
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ID 118421
タイトル別表記
Process of parenting a child with RB
著者
Murakami, Yoshie Toho University
Takeda, Yuko Keio University
Kawasaki, Yuko University of Hyogo
Kishino, Megumi Tokushima University
Kageyama, Megumi Tokushima University
Sakamoto, Tomoka Tokushima University
キーワード
Experience
Family nursing
Genetic
Parenting
Retinoblastoma
資料タイプ
学術雑誌論文
抄録
Background : Retinoblastoma(RB) occurs at a very young age. Since the disease is diagnosed at an early age, the family is responsible for the care of the childʼs disease acceptance.
Objective : This study aims to explore the parenting process of children with RB toward disease acceptance.
Methods : Parents of eleven children with RB living in Japan were interviewed, and the data were analyzed using the Modified Grounded Theory Approach of Kinoshita(M-GTA).
Results : There were twenty-one concepts representing the process of parenting a child with RB while guiding him or her toward disease acceptance, and nineteen of them were classified into ten categories based on semantic similarities. The two other concepts showed similar interpretability to categories. These categories and concepts were summarized into two core categories : “Helping the child develop a positive mindset to define the disease as a part of him/herself ” and “Paving the way in advance for the child to live comfortably when his or her living space expands”.
Conclusions : In a cyclical framework of parenting, consisting of two core categories described in Results, the parents coordinated these two approaches while maintaining balance by “Avoiding saying anything that does not need to be said” and established their process of parenting a child with RB while guiding him or her toward disease acceptance, according to their household situation. The results suggest the necessity of recognizing that in childhood-onset cancers, such as RB, and diseases involving genetic issues, problems tend to occur not only during the treatment period but also at the time of life events and providing support from a comprehensive perspective.
掲載誌名
四国医学雑誌
ISSN
27583279
出版者
徳島医学会
79
1-2
開始ページ
91
終了ページ
102
並び順
91
発行日
2023-06-07
出版社版DOI
出版社版URL
フルテキストファイル
言語
eng
著者版フラグ
出版社版
部局
医学系