直近一年間の累計
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ID 117140
タイトル別表記
Transitional Care of Adult Congenital Hemophilia Patients in Tokushima University Hospital
先天性血友病患者の移行期の実態
著者
西條, 早希 徳島大学
谷口, 早紀 徳島大学
岡本, 秀樹 徳島大学
富永, 誠記 徳島大学
矢野, 由美子 徳島大学
高橋, 真理 徳島大学
大坂, 朱美 徳島大学
キーワード
Congenital Hemophilia
Transitional Care
資料タイプ
学術雑誌論文
抄録
【Introduction】Congenital hemophilia is a category of hemorrhagic disease caused by a genetic defect in the production of coagulation factors. It is treated by administering regular coagulation factor injections on an ongoing basis. Hemophilia is a hereditary illness, often causing social and psychological problems as a result of the disease. To analyze the objective effects of hemophilia, we conducted a retrospective analysis in Tokushima University Hospital. 【Result】All 23 cases were men between the ages of20and72. Hemophilia A was present in17cases, and hemophilia B was present in six. Nineteen out of 23 cases were severe, and the others were intermediate. Medical assessments were conducted at pediatrics in seven cases and hematology in 16 cases. Adoption of the self-injection technique was not realized in five cases. Seventeen cases were complicated by hemophilic arthropathy, seven with human immunodeficiency virus(HIV), and 12 with hepatitis C virus. Eight participants were unemployed, and17were unmarried. 【Discussion】 Many adult hemophilia patients still visit pediatrics in our hospital. Hemophilia in the period of growth between adolescence and young adulthood is often accompanied by life-altering events such as entering higher education, marriage, and work experience. Therefore, collaboration among professionals of multiple occupations, such as doctors, nurses, pharmacists, medical social workers, and clinical psychologists, is essential. Furthermore, there are many cases of HIV and hepatitis C virus infections complicating hemophilia study due to the stigma surrounding HIV-tainted blood. 【Conclusion】It is imperative that we establish a long-term, sustainable, and multi-disciplinary transitional care and medical support system for patients and their families.
掲載誌名
四国医学雑誌
ISSN
00373699
cat書誌ID
AN00102041
出版者
徳島医学会
77
5-6
開始ページ
261
終了ページ
268
並び順
261
発行日
2021-12-25
フルテキストファイル
言語
jpn
著者版フラグ
出版社版
部局
医学系
病院
薬学系